PORTLAND!! Two awesome benefits coming up!

HUGE NEWS!!
The Need and Bangs are both re-uniting for a Team Natalie benefit show, July 23rd at Berbati's Pan in Portland, OR. Also on the bill are C Average and Thrones! This is going to be HUGE!! Get your tickets now: right here.


Also, tomorrow night (friday april 30th) there is going to be a raging dance party at Valentine's in pdx with proceeds from the bar going to the fund. Playing records will be your buddies Dj Magic Beans (maggie vail), Dj Books (justin trosper), and Dj Miss U (me!).. lots of soul and punk. Come boogie for a great cause!
xo sarah u.

big decisions

I haven't had much time to do an update these days but I am sitting in the car with a snoozin kid in our driveway! So I have a bit of time to write. Things aren't going super great. I am still waiting to get some important supplements like sea cucumber extract and more pau d'arco tea. The silly ash cloud really buggered up my orders and I haven't been able to get my full protocol going. My cancer is still moving at a rather quick pace. I thought it slowed for a bit but then I got a chest infection and the cancer took that opportunity to grow. It's so scary how aggressive it is.

I am having a big issue with time. I need just a few more months to really see how this protocol is going to work and I am not sure I have a few months. My liver tumours are now big enough for me to feel with my hands as well as my spleen. I am starting to get pain and a bit of nausea. A new tumour popped up in my leg and I think I now have one in my right ovary as well. I am terrified that my spleen will burst and no doctors here in the UK will remove it. They are just offering more chemo to see if it will help. They are not that confidant. They said that's why they never pushed chemo much in the first place as nothing works that great for angiosarcomas. It's a really beast of a disease. This has not put me off though or made me feel like I am going to die. I just feel the need to make the right decisions and move rather quickly. I just need more bloody time!

After talking to Dr Gammill on the phone we decided to start me on Methylglyoxal. He sent me home with two bottles of it in case this sort of situation. It should work rather quick and hopefully stop things. Google it for more info. It's very interesting and Dr Gammill has very good results with it. This should buy me some time. The next thing we are looking at is going to America for Insulin Potentiated Low Dose Chemotherapy. Dr Gammill would oversea this adventure and it will be administered at the San Diego Clinic in Mexico. The bad thing about this is that it could take up to a year and it's bloody expensive. We will have to move temporarily to the States. I love my home here and it really breaks my heart to have to uproot Dillon and Dee's life but hea, we have to do what it takes. There is a lot to figure out on that end. We have two fantastic dogs, a house and a mortgage to work out. Plus Dillon's grandparents will be so upset not to see their grandson every week like they do now. Unfortunately, I do think this is the best treatment for me and I don't want to continue to underestimate this disease. It's not your normal cancer and I don't want to be slow at attacking it with everything we got at this point. I am on the edge of things going very badly. Lucky I still feel fit to travel but I don't want to get any worse at all. Pain is very scary as well.

You may be wondering why I don't take the chemo offered here in the UK and the reason is that it will totally destroy my immune system, create drug resistance that would bugger up my chance of doing low dose chemo in the future and it just doesn't really work! Insulin potentianted low dose chemo on the other hand will be a slow but safer way to administer chemo and it won't have the massive damaging effect on my immune system as full dose. It will still could have it's side effect and still disrupt my immune system a little bit but not nearly as bad as high dose. I am in danger with my spleen not working. If I wreck my immune system and have a spleen that doesn't work and I get an infection it could very easily kill me. Look up IPT for more info on this type of chemo. Unfortunately I will still need to get my spleen removed to help things along and try to get any other tumours we can remove out as well. This costs more money and more scary surgery. I am not happy about this but again, do I want to mess around with this cancer? I need to do what it takes.

So that's where we are at at the moment. Things may change again, you never know! It seems to change from one week to the next. I will try to keep you updated. Be on the lookout for fundraising adventures my fantastic friends are doing and if you have any clever ideas let me know. We will need to raise quite a bit of money because we could be looking at spending $75,000 in the next year. Ouch!

By the way the angoigenesis things I am taking are really fascinating. Look them up if your interested.
Bind Weed
Sea Cucumber Extract
Curcumin
Shark Liver Oil
Coco
Green Tea Extract
Thalidamide
Captropril
Bovine Cartilage
(no shark cartilage as it's really expensive and totally disgusting)
Tannic Acid
am I forgetting one?

Thanks for all your lovely support!
nat

Appt with Royal Marsden

We had a nightmare journey getting to London yesterday for our appoitment with the Sarcoma unit at the London Royal Marsden. It took us 5 hours to get to our appointment and we were 1 hour late! They were very nice there but would not even consider any type of surgery or radio frequency ablation for my liver (too many tumours. They just offer chemo. It looks like not too bad of a chemo (TAXOL)where you get it once a week and it doesn't make you loose your hair or damage your immune system but you get resistance to it pretty quick. That's one to keep in the back pocket but I don't think I will be doing it yet.

We are still concentrating on angiogenesis inhibitors. All the research we have been doing points in this direction. We need to get many different types of angiogenesis inhibitors and take large doses of it and boost my immune system. I have also upped my dose of Thalidamide to 200mg as we found a study of a woman who acheived complete remission on 200mg for 4 weeks. Doesn't work for everyone but I am giving it a try. IT does make me feel a little weird though and a bit tired.

If I can get shrinkage this way then we may consider doing IPT or low dose chemo to try to kill the remaining cells. This is a clever way to do chemo as you don't get drug resistance and no side effects if done properly. They use insulin to bring the chemo into the cancer cells as cancer loves sugar. I am getting a genetic test done tomorrow in London that will test me for any chemotherapy agents and natural treatments that I am compatible with. If any really stand out then we will probably go this route at some point.

This all may change depending on results but this is what we are working on now.

The plan so far

So we are back home now and all geared up on getting me healed from this damn beast. We did a big shop at the homeopathic pharmacy in LA so I could get started right away on the angiogenesis inhibitors as well as other things to fight cancer and boost immune function. I will list it all below. I am taking 61 pills a day at the moment although we may be able to get that down a bit with finding higher doses of things.

As far as what was concluded in our last meeting with Dr Gammill we have a few decisions to make. I really need to get the tumour load down so my body has a chance to fight back. My spleen is the most obvious place to start as I can loose it without major problems. I am not too happy about this but I chance my spleen bursting if I don't get it removed. So we need to find a doctor in the UK who will agree to remove it for me. One of the downfalls of Nationalised Medicine is that you can't just ask for proceedures to be done. They have to agree to it. Now to deal with the tumours in my liver we are looking at Radio Frequency Ablation. I found a few places that do this on the NHS so I just need to get a doctor to refer me to one. They can blast many small tumours in the liver this way. It just takes one overnight stay.

For the tumours on my chest we are looking at conformal radiation or IMRT or gamma knife radiation. This type of radiation has minimal damage to the body as it targets just the tumour and not any other area. I am hoping what I am doing myself at home will shrink the tumours but these are my options to give my body a break so I can fight the rest of the cancer floating around in my blood. If I can't get these things done on the NHS (which is a big possibility)then we will go to China (yes China!)where they have all this really high tech equipment but for a lot cheaper than going private in England. Dr Gammill sends people over there all the time. China could cost around $20,000.

Once I get the majority of the tumours out of my body then I will continue on with all my home medicines and hope that it will keep the tumours from coming back. Healthy diet, healthy lifestyle free of chemicals and keeping constant tabs on my cancer will be the way forward. I can't ever get complacient about it.

I have a few doctors appoitments coming up where I will be discussing this plan and hopefully I will find someone who will agree to this. If not we are going to China!

Here is the list of stuff I am taking....

Selium 500mcg promotes apoptosis
Vitamine E Succinate 1000mg promotes apoptosis
Vitamine C 3000mg immune function
Zinc 50mg immune function
Vit D3 1000mg promotes apoptosis and immune defense
Tri Magnesium 600mg immune
N-Acetyl L-Cysteine 1200mg immune function
DHA(codliver oil) 500mg general health
DHEA 10mg adreanal function
Iodine 2 drops needed for everything!
Evening Primrose 1000mg cancer fighter
Cell Forte (IP6+Isodol) 6 pills boosts immune and cancer fighter
Lipotropic Complex 6 day helps with liver
Bromelain 850mg anti-inflamitory and cancer fighter
DIIM 4 day promotes apoptosis and angiogenesis inhibitor
Beta Glucan 1000mg immune function
Immunity Mushroom 2 day immune function
Thymunex 3 spray day immune function
CoQ10 200mg many things
Curcumin w/bioperine 5.6gm angiogenesis inhibitor
Shark Cartalage 5.250gm angiogenesis inhibitor
Captopril 75mg angiogenesis inhibitor
Thalidomide 1 pill angiogenesis inhibitor
Green tea 1000mg apoptosis
Hoxeys Formula cancer fighter
Astragalus 1 dropper 3xday
Echinacea Goldenseal 1 dropper 5xday for one week
Fermented Soy Protein powder 4 tblsp day cancer fighter
Bitter Almond Oil with cyclodextrin 4 day kills cancer
Greens Powder and Spirulina
Paul d’Arco Tea 10tblsp day immune function

OLYMPIA!

Olympia! Come out to this rad show on Saturday and help make $$ for the fund! xo sarah u.

DJ night at Valentines in Portland

Shortly after Sarah Utter's art opening at Land we'll be moving the fun over to Valentines for a dance party extraordinaire to benefit Natalie Cox and help her fight cancer. So come and dance and drink up for Nat - a portion of the bar's proceeds go directly to her.

Featuring...
DJ Miss U (aka Sarah Utter)
DJ Books (ak...a Justin Trosper)
DJ Magic Beans (aka Maggie Vail)

Start Time:	Friday, 30 April 2010 at 21:30
End Time:	Saturday, 01 May 2010 at 02:30
Location:	Valentines in PORTLAND OR

Carli Davidson invited you to the event "Pet Photo Fundraiser for Natalie Cox!"

Carli says, "This is a great cause and a cheap -o photo package! Shoot me an email to make an appointment for April 18th, 100% of proceeds go to help Natalie fight cancer!".

Event: Pet Photo Fundraiser for Natalie Cox!
What: Fundraiser
Start Time: 18 April at 09:30
End Time: 18 April at 21:30
Where: $75 for a studio shoot and a processed photo!

Fundraiser for Natalie Cox! Cheap pet photos! All proceeds go to cancer treatment!

Natalie is currently living in England, and getting special cancer treatments done in San Diego. All of the proceeds from this shoot will go to covering her travel and treatment costs! Spaces are limited to the first 15 people, so get in touch ASAP.

One day only, April 18th, Shoot is $75 dollars and includes a processed digital image. All species welcome.

Email me for appointments or details! carlidavidson@gmail.com

To see more details and RSVP, follow the link below:
http://www.facebook.com/n/?event.php&eid=115336205144049&mid=2260c73G28878083G552c02bG7&n_m=natalie%40ganx4.com

Benefit Show

WHAT: Bands playing benefit for Team Natalie fund! (wish I could be there!)
WHEN: April 10th, 8:30pm
WHERE: 1611 4th, Olympia WA
WHO:
Broken Water back from US Tour!
w/Nuclear Animals
Morgan and the Organ Donors
and Ferrari Sunrise (aka Kamilchee Chad) short set... don't miss it!

doors at 8:30, show time 9pm sharp

Center for the Study of Natural Oncology

Ok, so as you know we are in Del Mar. Many of you might be wondering what we are doing here exactly. I wasn't too sure myself as I didn't know what to expect. We are basically staying in a family home in the suburbs of Del Mar which is kitted out with 3 private rooms, kitchen, study full of educational books, sauna, oxygen machine, other weird machines and all sorts of crazy stuff in cupboards. Vincent Gammill runs all of this basically and is a biochemist and a naturopath but very heavy on the chemist side of things and very very knowledgeable in natural oncology. He is very logic driven and doesn't work on theories. I like that. He is also not an egoist like you get with most people in the medical/science field and very trustworthy.

We have basically spent the first 3 days learning about cancer, diet, detox, mechanisms of action and talking a lot about ways to get at my cancer specifically. This is by inhibiting angiogenesis (the growth of new blood vessels) as my cancer is a cancer of the blood vessels. The tumours generate it's own blood vessels to keep it alive once it reaches a certain size. We want to stop that so they for one can't grow and spread and two so they shrink. This is totally doable. I have a big ol list right now of angiogenesis inhibitors. A few examples are curcumin, bindweed, capitrol, shark and bovine cartilage and thalidomide.

I also need to support my immune system and clear my body out of toxins and mycoplasma. I do need to try to kill cancer cells as well! There are many things that can do this and Vincent has a lab and makes up all sorts of crazy chemist concoctions that do this. I have many different things to try and if one thing doesn't work we go to an other. I can't even get into this as it's his stuff and hard to explain.

Other things I will be doing are drinking lots of Pau d'Arco tea. It's the proper kind that Vincent is supplying me. Also Zeolite, kelp/Iodine, milk thistle, orleander, aloe vera, , selenium, D3, astragalus, valine, super foods, omega 3/6 oils vitamins, green tea extract, blood root, cultered soy, hoxey herbal formula. So yeah, lots of stuff and more I haven't listed. My diet is already good so not much change in that. Just lots of veg, whole grains, colourful foods, an egg or two, fish now and again, maybe lamb and lots of just clean food. Basically what I have been doing already. Juicing and a green smoothie in the morning with lots of good stuff in it.

We are learning lots right now and the path is becoming clearer as to exactly what I will be doing. We are finalising a lot of stuff today and tomorrow.

All your awesome donations will be going towards paying for this week, plane tickets, medication, supplements, on-going treatment, a cancer profile test, follow up tests, travel, things to beef up our sauna for detoxing and immune support therapies like IV mistletoe.

By the way, I am already feeling a softening of the tumours on my chest as i have been drinking a shed load of pau d'arco tea and already started a few angiogenesis inhibitor drugs (capitrol and thalidomide). yeah!

Also, I would highly advise anyone with cancer to talk to Vincent and do this week long program. It's a lot to learn and you need to be willing to take your own health into your own hands. He knows his stuff and will work with you for life.

overwhelmed

I have to say it's an understatement that I am totally overwhelmed with all the donations that are flooding in. People I don't even know are sending in money. What a community I have around me and what amazing friends I have. I can't really put into words my appreciation for the generosity of everyone. How do I thank everyone? I am not sure yet. All I know is that coming here to the Center for the Study of Natural Oncology is the best move we have made. We are learning a lot right now and slowly putting together a protocol. I am confidant I will beat this. It's not impossible. More details on how I will do this to follow. MAN!, Dee and I miss our son Dillon but we get to talk to him everyday on Skype. Thank you Skype for existing as we get lots of cyber kisses from overseas that makes me cry.
-nat

Overview incase your not up to date

This is the email I sent to my friends and family last week to update everyone on what was going on with me. If you are unfamiliar with what has happened in the last year I will quickly give an overview.

July 2008 I noticed a lump in my breast. Docs said not to worry as I was breast feeding and it didn't look cancerous under ultra-sound. They said come back if it hasn't gone away after I was done breast feeding. Well 9 months later I stopped and the lump grew very fast. It took a month to diagnose it and the doctors all thought that if it was cancer it would be mild. Ha! July 09 two days before my son's 2nd birthday I was told I had angiosarcoma. Well hemangiosarcoma to be exact. Big big tumour in my breast. I knew it had to go. This is a VERY rare cancer so not a whole lot of info out there on it. .01% of cancers in the world are this. It is caused by vinyl choloride and other enviromental toxins. I just happened to be working with vinyl fabric for the last hmmmm 8 years or so plus I did screen printing with plastisol inks with bad ventilation. Not a coincedence.

After a cat scan they found more tumours in my left breast. Right, both breasts had to go as this is a aggressive cancer and one that likes to come back and spread. I had the operation in late July. No other cancer was anywhere else that they could see. I was offered chemo which i declined as a lot of literature said chemo was not effective and I wasn't into the idea of poisioning myself in hopes my cancer died before I did. Radiation was another option but my chest wall was too square and my oncologist said they would get a lot of my lungs. We decided to watch and wait.

My husband and me got educated very fast on anti-cancer diets. We read and read and were overwhelmed with info. We decided I should try the Budwig diet. I did this and tracked my cancer with the HCG test done by Dr. Navarro. I thought everything was going ok as I felt great and no lumps were reappearing. Then in Jan 2010 I started feeling a bit tired and having a few issues. Those cleared up and then I got a cold in Feb which lasted all month and I notice a new possible lump. I went to the doctors who ordered another cat scan which was done in March. Well this is what I wrote two weeks ago.....

Dear friends and family who I haven't talked to already,
I found out last Monday that my cancer (angiosarcoma) has spread to my spleen and my liver. I have an enlarged spleen from the multiple tumours and many in my liver as well. I also have two now on my chest wall. I was told by my surgeons that there was nothing more they can do for me and told me to contact oncology to talk about chemo. They said this is not curable. That's what they say but I have never really believed doctors much. I am not a statistic, I am an individual. Many people have beat the odds and I intend on doing the same. I am still in good health with only a few bits of pains now and again and a bit of tiredness. Chemo will not cure me and it will not necessarily extend my life either (quality of life is more important to me) as this cancer is a weird bugger and not much of what conventional doctors can offer will help me.

The plan of action is this. We are flying to San Diego to meet up with The Center for the Study of Natural Oncology (www.natural-oncology.org) Wednesday. Dee and I are having a 5 day intensive program with a specialist to discuss my cancer, make a plan of action, do blood tests, look at my diet, detox, talk about treatment options and get them organised and a whole load of other things. They are a non-profit organisation (though this is not free!) and they really know their stuff. The plan is to stop the tumours blood supply therefore stopping the cancer spreading, then to organise treatments that will support and boost my immune system all without making me sick. They believe they can help me and achieve this. It will be a lot of work and not be too cheap either as it will all be out of pocket for us but hea it's only money. This is my life and I will do what it takes to raise Dillon with my best friend Dee. I have to be there to see Dillon grow up.

We will also be talking to the sarcoma unit at the Royal Marsden in London as well when we get back. They are all just being to slow for us. We are not against using a combination of natural/allopathic treatments as long as what we do actually works without killing me.

We could use your support, well wishing, healing thoughts and charitable donations or ideas on how to raise some money to help pay for drugs, supplements, travel costs and treatments. Maggie and Deanna will probably be helping out with that on the USA side. More info will be forthcoming. I will give everyone an update soon after we get back April 6th.

Donations!

Hi, this is Sarah U. I'm a friend of Natalie Cox, and helping out a bit to set up this here bloggity blogg! Natalie is battling a rare and aggressive form of cancer called Angiosarcoma, and needs all the love and support of her friends and community. Let's help raise some funds for her treatment, so she can use her energy to focus on her family and health -- to donate directly to the cause, just send a paypal donation to midnighttosix@btinternet.com.

I kept trying to make a direct link to her paypal page, but blogger is being a real jerk about it! If I can figure out a direct link, I'll post it soon.

GO TEAM NATALIE! Please, feel free to post and re-post this site wherever you can!! We love you Nat.